REGIONAL & NATIONAL OrganizatioNS

Chesapeake-Potomac Spina Bifida Association

Toni Shumate, Executive Director

P.O. Box 1750  

Annapolis , MD 21404    

1-888-733-0988, (410) 295-9222

www.chesapeakespinabifida.org            

Spina Bifida Association of America

4590 MacArthur Boulevard, NW, Suite 250

Washington , DC   20007

(202) 944-3285

www.SBAA.org

Local spina bifida Clinics & Programs

Children's National Medical Center

Spina Bifida Program

Clinic Coordinator:  Leslie Phillips, CPNP

111 Michigan Ave., NW

Washington , DC 20010-2970

(202) 476-3092

www.childrensnational.org

*First 3 Tuesdays of month.  Orthopedics, Urology, Physical Medicine, and Neurosurgery.

A.I. Dupont Hospital for Children
Spinal Dysfunction Program

P.O. Box 269

Wilmington DE   19899

(302) 651-4200, (302) 651-5054

*Every Tuesday.  Orthopedics, Urology, Social Work, Neurosurgery

Georgetown Univ. Spina Bifida Service

Pediatric Services

3800 Reservoir Road, NW

Washington , DC   20007

(202) 444-8518

*No spina bifida clinic.  Neurosurgery, Orthopedics, Urology (through CNMC), Physical Medicine, PT, OT services available separately, for children and adults.

INOVA Fairfax Hospital for Children

Spina Bifida Clinic

8505 Arlington Blvd, Suite 100

Fairfax VA   22031

(703) 970-2690

*Second Wednesday, every other month.  Neurosurgery, Rehabilitation/Physical Medicine, Orthotics, and Urology.  Case management available separately through Care Connection.

Kennedy Krieger Institute

Philip A. Keelty Center for SB & Related Conditions

Director:  Eric Levey, MD

707 North Broadway

Baltimore , MD   21205

(443) 923-9130

(443) 923-9400 ( Care Mgmt Center )

(888) 554-2080 (Toll Free)

www.spinabifidacenter@kennedykrieger.org

*Second, fourth and fifth Fridays of each month.  Pediatrician, Urology, Orthopedics, Physical Medicine, OT, Neurosurgery, Neuropsychology, Podiatry, and Social work.  Also see adults with spina bifida.

University of Virginia

Kluge Children’s Rehabilitation Center

Spina Bifida Clinic

2270 Ivy Road

Charlottesville , VA   22903

(434) 924-5272, 800-627-8596 x 0045

Bethesda Naval Medical Center

301-319-4095

SPORTS & RECREATION

MD - Bennett Institute/Kennedy Krieger

            www.kennedykrieger.org

            Just about any sport or activity you could imagine.

            3825 Greenspring Ave. , Baltimore , MD   21211

MD – Chesapeake Region Accessible Boating

            www.crab-Sailing.org

            Monthly free sails, May-October, for person with disabilities.  410-626-0273

VA - Fairfax Falcons – Paralympic Sports

            www.fairfaxfalcons.org

            www.fairfaxcounty.gov/ncs

Wheelchair basketball, field & track, tennis, etc.

VA / DC / MD - NRH’s Sports Program

(A Program of the National Rehabilitation Hospital )

www.nrhrehab.org

Sled Hockey ( Arlington , VA ):  Joan Joyce 202-877-1420

Quad Rugby (DC):  Amy Davis 202-877-1407

Power Soccer (DC):  Nathan Graeff 202-877-1295

Wheelchair Tennis (Upper Marlboro, MD):  Brenda Gilmore 240-460-5741 

Wheelchair Basketball (DC):  Lisa Leach 202-877-1441

Handcycling (DC):  Liz Thrush 202-877-1427

VA -  Eddie’s Club , Inc. -- Young adult baseball.   

            Springfield , VA  703-304-2330

www.eddiesclub.org

VA – Springfield Challenger Baseball

            www.springfieldchallenger.org

ACCESSIBLE PARKS

Clemyjontri Park – McLean , VA

Family Rec Area at Lee Dist Park – Alexandria , VA

Hadley’s Playground at Fall Road – Potomac , MD

Find playgrounds in your area:  www.boundlessplaygrounds.org